MND or ALS
Motor Neuron Disease (MND) is a collective name for muscular diseases which affect nerve cells. These neurons control the muscles, but die slowly. Amyotrophic Lateral Sclerosis (ALS), Progressive Spinal Muscular Atrophy (PSMA) and Primair Lateral Sclerosis (PLS) are diseases that belong to MND. Even though MND is a collective name for these diseases, ALS is mostly used.
Continue my battle
Amyotrophic Lateral Sclerosis (ALS) was until recently an unknown disease. Through the campaigns ‘I have passed away by now’ and ‘Continue my battle’ ALS gained more ‘popularity’ in the society. Name recognition increased from 20% in 2011 to more than 90% in 2014.
What is ALS?
ALS is a nerve- and muscle disease which leads to dead. 1.500 people in de Netherlands are ALS patients. Unfortunately, 500 patients die and 500 people become new patients every year. So far, the cause and medicine for ALS is unknown. For those 1.500, with approximately only 3 till5 years to live, there isn’t a bright future. There is only one way to get rid of ALS: scientific research. The Dutch Foundation for ALS is fundraising to examine the cause of ALS with a main focus on the quality of life and care for the patients. A lot of scientific research is needed to find the cause and a medicine. More information can be found on: http://www.als.nl/wat-is-als.
The Dutch ALS Foundation
The Dutch Foundation for ALS is founded in 2005. Three organizations came together and merged: Foundation ALS Researchfunding, Foundation Valscherm and Foundation ALS Centre the Netherlands. The Dutch ALS Foundation has the following goals: encourage scientific research to find the cause and treatment of ALS, improvement of the quality of care and life of ALS patients and last, create more acquaintance and understanding for ALS. Their mission is:
ALS on the map, ALS off the map…!